of third legs, mental gymnastics and more

My Story
Secrets to Successful
Coping Skills
Quotes, Poetry and Stories
That Resonated
Dagmar's Walk
in the Park
A Few Words
on Pain
Books That Helped
Me Grow
Wings Of Hope

me in the new wheelchair

Other Myo Sites

IBM Page

Myositis Association


JH Myositis Center

The Hospital for Special Surgery in New York
myositis section

Myositis Support Group in Texas

The Muscular Dystrophy Association

Bill Tillier

Roly Clulow's Survive Myositis web site

Life! disabled


Happy Spring 2013! You can read the 2013 update to my story here.

Learn all about this year's 2013 walk here.

Or, get inspired for this year's walk by checking out the fun we had in 2012!

          Myositis Walk 2012!
                         A successful 2012 Walk

You can see my updates from previous years by clicking on the
2012, 2011, 2010, 2009, 2008 updates...

...or, to start from the very beginning, click on: My Story.

Having IBM (Inclusion Body Myositis) means coming to grips with a constantly changing life. The perpetual curtailment of activities requires that you rise above the plight. You need to constantly reinvent yourself in order to adapt to yet another limitation and, at the same time, acknowledge the grieving process that comes with these changes.

It means learning to let go and yet go on with your life.

Comments are welcome! Please feel free to email me your thoughts at (The user name is myomusings).

Locations of visitors to this page

© 2007-2012: Dagmar Slaven. All rights reserved.