NINDS
IBM Page
Myositis Association
AARDA
JH Myositis Center
The Hospital for Special Surgery in New York
myositis section
The Muscular Dystrophy Association
Bill Tillier
Zara King
CONTACT
daxslaven
(at)
comcast(dot)net
Having IBM (Inclusion Body Myositis) means coming to grips with a constantly changing life. The perpetual curtailment of activities requires that you rise above the plight. You need to constantly reinvent yourself in order to adapt to yet another limitation and, at the same time, acknowledge the grieving process that comes with these changes.
It means learning to let go and yet go on with your life.
Comments are currently down, but you can still email me your thoughts via gmail.com. (The user name is myomusings.
