Mom Found Helpful
JH Myositis Center
The Hospital for Special Surgery in New York
The Muscular Dystrophy Association
Roly Clulow's Survive Myositis Site
Wheel Chair Junkie
Power Chair Diaries
A Sad Update |
This is Michael, Dagmar's son, writing on her behalf. It is with great sadness that I let you know that she has left this world for her next adventure. Here is a link to her obituary. It can also be found in the Quincy Patriot Ledger.
Because this site meant so much to so many people and because Mom loved the many connections she made over the years due to it, I am planning to keep it live as a reference for those dealing with their own diagnoses.
You can see Dagmar's yearly updates from previous years by clicking on the links below
2015, 2014, 2013, 2012, 2011, 2010, 2009, 2008
...or, to start reading about her journey with Inclusion Body Myositis from the very beginning, click on: My Story.
Having IBM (Inclusion Body Myositis) means coming to grips with a constantly changing life. The perpetual curtailment of activities requires that you rise above the plight. You need to constantly reinvent yourself in order to adapt to yet another limitation and, at the same time, acknowledge the grieving process that comes with these changes.
It means learning to let go and yet go on with your life.
Comments are still welcome. Should you be aware of any links to the left that need to be updated, or can help me give proper attribute to any of the anonymous quotes she posted, please feel free to send an email via gmail. (The user name is mycalls).
© 2007-2016: Dagmar Slaven. All rights reserved.