|Wings Of Hope|
JH Myositis Center
The Hospital for Special Surgery in New York
The Muscular Dystrophy Association
Roly Clulow's Survive Myositis Site
Wheel Chair Junkie
Power Chair Diaries
Happy Spring! |
My 2015 update is here!.
We also want to make sure you know about Team Sully's Walk for Myositis. It's happening June 13, 2015 at the Cape Cod Canal. We hope many of you local folks will be able to attend and support our cause!
You can also see my updates from previous years by clicking on the
2014, 2013, 2012, 2011, 2010, 2009, 2008 updates...
...or, to start from the very beginning, click on: My Story.
Having IBM (Inclusion Body Myositis) means coming to grips with a constantly changing life. The perpetual curtailment of activities requires that you rise above the plight. You need to constantly reinvent yourself in order to adapt to yet another limitation and, at the same time, acknowledge the grieving process that comes with these changes.
It means learning to let go and yet go on with your life.
Comments are welcome! Please feel free to email me your thoughts at gmail.com. (The user name is myomusings).
© 2007-2015: Dagmar Slaven. All rights reserved.