NINDS
IBM Page
Myositis Association
AARDA
JH Myositis Center
The Hospital for Special Surgery in New York
myositis section
Myositis Support Group in Texas
The Muscular Dystrophy Association
Bill Tillier
Roly Clulow's Survive Myositis web site
Life! disabled
CONTACT
myomusings
via
gmail
Also want to thank everyone who helped to make the 2011 walk a success.
You can access past years' updates by clicking on the
2011, 2010, 2009, 2008 updates...
...or, to start from the very beginning, click on: My Story.
Having IBM (Inclusion Body Myositis) means coming to grips with a constantly changing life. The perpetual curtailment of activities requires that you rise above the plight. You need to constantly reinvent yourself in order to adapt to yet another limitation and, at the same time, acknowledge the grieving process that comes with these changes.
It means learning to let go and yet go on with your life.
Comments are welcome! Please feel free to email me your thoughts at gmail.com. (The user name is myomusings).